Facilitating equitable access to palliative and end-of-life care for underserved populations (2024-2025)

A unique knowledge exchange & learning event series

Registration is now open for a series of lively knowledge exchange events seeking to explore the connection of palliative care approaches in the health system and community organizations. The sessions are designed to facilitate connection across the whole continuum of care, promote knowledge exchange among attendees, advance the uptake of existing research, and support future research.

Palliative care is a holistic approach to improving the quality of life for people living with serious, complex, or terminal illnesses, or their families. This care isn’t only for people at the end of their lives; it has benefits for people and families across the entire illness trajectory and even includes family support after the death of a loved one. Accessing this care easily and early is important for supporting patients and their families throughout the illness journey.

This series is hosted by the BC Palliative Care Research Collaborative, and supported in part by UBC Health through their Health After 2020 program.

Event description

This will be a three (3) part series of online knowledge exchange events focusing on the integration of health system and community approaches with the following theme:

Facilitating equitable access to palliative and end-of-life care for underserved populations.

The learning exchange event will serve as a platform to:

  • Facilitate knowledge exchange among the palliative research community;
  • Provide opportunities for advancing knowledge translation of existing research; and
  • Shape the future research agenda in BC based on the identified gaps in research and the input of people with lived experience.

Inform the sessions – take environmental scan survey!

We invite you to complete this short survey to share your knowledge about the lived experience of access to palliative care for underserved populations and identify current opportunities and connections to help improve equitable access to care for these populations.

The survey should take roughly 15 minutes to complete, depending on how much you’d like to write. Your input will be vital to help shape the content of the Knowledge Exchange Series.

Event details

Three 2.5-hour interactive online sessions, addressing the theme “Facilitating equitable access to palliative and end-of-life care for underserved populations” will be held on three consecutive Wednesdays in April, 2025:

  1. Wednesday April 2, 2025 – 1-3:30pm
    Exploring the lived experience of access to palliative and EOL care for underserved populations.
  2. Wednesday April 9, 2025 – 1-3:30pm
    Current opportunities and connections that support improving equitable access to palliative and EOL care for underserved populations.
  3. Wednesday April 16, 2025 – 1-3:30pm
    What are the future opportunities for improving access to palliative and EOL care for underserved populations?

Participants

This event is intended to bring together health system representatives, academics, community organizations and the public. No matter what role you play in a patient’s journey with life-limiting illness, or whether you are a patient or family-member yourself, you have valuable information to share.

We therefore welcome anyone with an interest in improving access to palliative and end-of-life care for underserved populations to join this event. This includes:

  • UBC and non-UBC researchers (including those outside of BC)
  • Research users from the health system and community, such as policy and decision makers, healthcare providers and non-profit or community organizations
  • People with lived experience or knowledge of accessing palliative or end-of-life care for underserved populations*

*Some honoraria and funds to cover expenses are available to overcome any barriers for patient or community partners to attend. If you are a patient or community partner, contact us for more information.

Event objectives

The objectives of the learning exchange event will be to:

  1. Explore the lived experience of access to palliative and end-of-life care for underserved populations.
  2. Current opportunities and connections that support improving equitable access
  3. What are future opportunities for improving access?

Populations of interest

The populations that are known in the literature to experience challenges when accessing palliative and end-of-life care are shown below. These will be the populations that the knowledge exchange series will focus on.

People living with the following life-limiting illnesses:

  • heart failure
  • dementia
  • renal failure
  • hematological diagnoses
  • rare diseases
  • organ failure
  • neuro-developmental disabilities

Those experiencing life-limiting illness and who:

  • reside in rural or remote communities
  • are experiencing unstable housing or homelessness

Those experiencing life-limiting illness and who are:

  • Indigenous
  • culturally diverse (not Indigenous) including immigrants and refugees,
  • over 85
  • neurodiverse
  • experiencing mental illness
  • experiencing a substance use disorder
  • 2SLGBTQ+
  • incarcerated
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