This is a two-year initiative (2020-2021) funded by the Public Health Agency of Canada entitled, ‘Mobilizing and equipping community-based organizations to promote awareness and support for person-centred care for people living with dementia and their family caregivers ‘. The aim is to promote the engagement of people at risk of dementia, people living with early stages of dementia and their family and friends in Advance Care Planning (ACP). The project is building on the success of an existing community-led Advance Care Planning model developed by BC Centre for Palliative Care for the general public.
Resources this project has created
1. Environmental Scan Report:
Click here to read the executive summary.
2. Community Resources
- Training Curriculum: BCCPC is committed to providing annual training sessions for new cohorts of organizations who are passionate about advance care planning and public education. Training sessions in 2022 will be announced through their monthly newsletter (CentrePoint) and mailing list – stay tuned!
- Question-and-answer tools to engage clients: Tools containing question-and-answer scripts were developed to help you share information and resources about advance care planning through existing interactions with your clients, for example, during intake, support line conversations, and support groups. There are two tools available for engaging:
- Social Media & Marketing Toolkit is available to help you share these public-friendly resources in your community. It contains informational blurbs and graphics to support your own social media campaigns and newsletter releases
3. Public-Friendly Resources:
- Resources for older adults and people living with early stages of dementia:
- My Wishes, My Care: Advance Care Planning Information Booklet, which walks the reader through the three steps of advance care planning, Think, Talk, Plan. The booklet also contains two additional resources:
- The health-care decision-making flowchart, which illustrates how healthcare decisions are made in B.C.
- Advance care planning checklist, which contains links to resources that support every step of the process.
- My Wishes, My Care: Starting the Conversation is a worksheet of questions to help with thinking and talking about what matters most: values, beliefs, and wishes for future health care and personal care.
- What you need to know about standard representation agreements (section 7) is a guide to understanding the standard representation agreement.
- My Wishes, My Care: Advance Care Planning Information Booklet, which walks the reader through the three steps of advance care planning, Think, Talk, Plan. The booklet also contains two additional resources:
- Resource for their family and friends:
- You’ve been asked to be a substitute decision-maker, now what? is a guide to understanding the role, rights, and responsibilities of substitute decision-makers in B.C.
- Online Resource Hub: all resources above, and more can be found at bc-cpc.ca/acpresources.
4. Presentations:
- United Way Healthy Aging Webinar (Sept. 7th, 2021)
- Quality Forum 2021 (Feb. 25th, 2021)
- Canadian Hospice Palliative Care Conference 2021 (Oct. 22nd, 2021)
- Federal Provincial Territorial Coordinating Committee on Dementia (Oct. 27th, 2021)
- Engagement of People with Lived Experience of Dementia (Canadian Consortium on Neurodegeneration in Aging; June 18th, 2021)
- National Community of Practice for Advance Care Planning Educators (Advance Care Planning Canada; Nov. 10th, 2021)
- South Vancouver Seniors Network (Dec. 16th, 2021)
- Canadian Dementia Learning and Resource Network (Dec. 14th, 2021)
5. Publications:
- Patient Voices Network 2020-2021 Annual Report (BC Patient Safety & Quality Council)
- The Scrivener Magazine (BC Notaries; January 2022 Issue)
PROJECT TEAM:
- Eman Hassan, Project Director
- Kathy Sheng, Project Manager, Curriculum Development Specialist, Knowledge Translation Specialist
- Kathy Kennedy, Project Lead, Community Development Specialist, Master Trainer
- Melody Jobse, Community Engagement
- Michelle Ouimet, Project Coordinator
- Neerjah Skantharajah, Project Coordinator
- Vi Ho, Project Coordinator
- Pam Martin, Evaluation Consultant
- Chibuzo Ottih, Performance Measurement Specialist
- Pam Warkentin, Communications Consultant
- Nicole Chovil, Research Consultant
- Leslie Ste. Marie, Writer/Editor
- Michelle Shute, Writer/Editor
- David Jung, Graphic Designer
- Jane Rowlands, Graphic Designer
- Irene Ou, Web Designer
- Jennifer Bond, Administrative Assistant
- Sarah Gray, Administrative Assistant
- Esther Owoyomi, Administrative Assistant
TASK GROUP
- Carol Anderson, Public Partner, Instructor, UBC Health
- Marissa Stalman, Dementia-Friendly Community Task Group Member, Maple Ridge Seniors Network
- Myrna Norman, Public Partner, Executive Member, Dementia Advocacy Canada
- Pat Porterfield, ACP facilitator, CEAN (Community Engagement Advisory Network), Vancouver Coastal Health
- Stephen Holliday, Instructor, North Shore Elder College Society
- Krista James, Legal Reviewer, BC Law Institute
ADVISORY COMMITTEE
- Angela Brooks, Program and Operations Coordinator – Population Health, United Way of the Lower Mainland
- Anthony Kupferschmidt, Executive Director, Langley Senior Resources Society
- Avery Milne, Provincial Coordinator- Knowledge Mobilization, Alzheimer Society of B.C.
- Barbara MacLean, Executive Director, Family Caregivers of BC
- Carol Anderson, Public Partner, Instructor, UBC Health
- Cathy Almost, Public Partner, BC Patient Safety & Quality Council
- Gloria Gutman, Principal Investigator, iCAN-ACP, Simon Fraser University
- Heather Cook, Seniors Services Advisor, Ministry of Health
- Jackie Scott, Advance Care Planning Volunteer, Sunshine Coast Hospice Society
- Julie Darney, Director – Education & Strategic Partnerships, Hospice Palliative Care Ontario
- Krista James, National Director, Canadian Centre for Elder Law
- Karine Diedrich, Director – ACP in Canada Initiative, Canadian Hospice Palliative Care Association
- Marissa Stalman, Dementia-Friendly Community Task Group Member, Maple Ridge Seniors Network
- Myrna Norman, Public Partner, Executive Member, Dementia Advocacy Canada
- Pat Porterfield, ACP facilitator, CEAN (Community Engagement Advisory Network), Vancouver Coastal Health
- Rachel Carter, Research Manager, Cultural Adaptations Project Manager, BCCPC
- Stephen Holliday, Instructor, North Shore Elder College
For more information regarding the project, please contact us at office@bc-cpc.ca
To stay up-to-date on our work, subscribe to our monthly newsletter, CentrePoint.
This initiative is supported by funding from Public Health Agency of Canada. The views expressed herein do not necessarily represent the views of Public Health Agency of Canada.
Cette initiative bénéficie du soutien de l’Agence de la santé publique du Canada. Les opinions qui y sont exprimées ne représentent pas nécessairement les positions de l’Agence de la santé publique du Canada.
